ALS Warrior Jacob Harper’s Standing Story

Altimate Medical and EasyStand Present

NO WHITE FLAGS

ALS Warrior Jacob Harper’s EasyStand Standing Story

Join Altimate Medical and EasyStand in celebrating ALS Awareness Month with No White Flags: ALS Warrior Jacob Harper’s EasyStand Standing Story.

What is ALS?

ALS Association Website
Resources and Support
Advocacy
TeamJacobWV

Who is Jacob Harper?

On March 16, 2022, Jacob was diagnosed with ALS at 23. Jacob, now 25 years old, is currently the youngest West Virginian living with ALS. His diagnosis is a very aggressive genetic version caused by a FUS gene mutation. The life expectancy of this ALS version is 1 to 3 years. In May of last year, he participated in a clinical trial at The Ohio State University, Columbus, OH. OSU is on the front lines of developing some incredible treatments which target these specific gene mutations.

Jacob remains an enthusiastic outdoorsman who enjoys activities such as off-roading, hunting, and spending time outside. Since being diagnosed with ALS, he finds solace in standing and being outside.

As the disease had progressed, Jacob began to lose the ability to stand and walk, at which point his community got together and he was gifted an EasyStand Evolv. The ability to stand with assistance from the Evolv has given Jacob some normalcy back in his life, while taking the pressure off his back and keep him moving. Giving him the freedom to be an ALS Warrior.

Altimate Medical and EasyStand do not endorse the use of the EasyStand Evolv outdoors, or on unlevel surfaces. Use of the Evolv in such manner is at the risk of the user.

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